Documenting Observations of Daily Living for Chronic Health Conditions

Improvements in modern healthcare have allowed many formerly fatal conditions to become survivable but chronic. At the same time, new technologies enable the movement of care away from clinics and into homes and schools. In this talk, I will use my research in technologies for chronic care across in two domains, autism and premature infancy, to illustrate how ubiquitous and collaborative computing systems and applications may enable new forms of patient care and empowerment. In particular, I will describe a vision for using Observations of Daily Living (ODLs) to diagnose and monitor the health of children both in the short-term and over a lifetime. The combination of remote sensing and record-keeping technologies with the infrastructure of Personal Health Records (PHR) and Electronic Medical Records (EMR) has the potentially to improve health outcomes for children with chronic conditions. At the same time, these new technologies raise questions about the collection of data in terms of both usability and usefulness of these systems as well as concerns around information privacy and surveillance.

Speaker Details

Gillian R. Hayes is an Assistant Professor in the Donald Bren School of Information and Computer Sciences at the University of California, Irvine where she directs the Social and Technological Action Research Group. Her research interests are in human-computer interaction, specifically in the areas of ubiquitous computing, computer supported cooperative work, and health informatics. At UCI, Dr. Hayes is affiliated with the Center for Biomedical Informatics, the Center for Ethnography, California Institute for Telecommunications and Information Technology, and the Laboratory for Ubiquitous Computing and Interaction. She received her B.S. in mathematics and computer science from Vanderbilt University in 1999 and her Ph.D. in computer science, with an emphasis on human-computer interaction at the Georgia Institute of Technology in 2007. More information can be found at http://www.gillianhayes.com. Right now, she hopes you will all attend the Workshop on Interactive Systems for Healthcare in Atlanta this April (http://www.chi2010.org/wish).

Date:
Speakers:
Gillian R. Hayes
Affiliation:
University of California, Irvine

    • Portrait of Jeff Running

      Jeff Running